So it's been awhile since I have been here. It's really been a bit rough on me this year so far both with personal issues (grandpa dying) and health concerns. I had to google this morning why drinking water and hunger are causing me heartburn. Turns out this isn't uncommon and can signal the presence of GERD. I am going to try some diet changes before I start taking a medication for it. It's really a rather unpleasant feeling.
I sent in a request today to get an appointment with the reproductive endocrinologist in Iowa City to see about getting my PCOS back under control. It's really running me right now which I am sure is not helping my MS either. They seem to feed off (no pun intended) each other a bit.
I spoke with a nurse from my Complex Care program this morning and she was really helpful. My biggest struggle is not really knowing what to expect from my body these days. Apparently fatigue is just always going to be there. Hopefully eating better and getting some exercise will help it out. Gotta start somewhere!
Things are finally slowing down a bit in my life. Most of the busy church activities have stopped for the summer so I have some breathing room in my schedule now. Hopefully I can use this extra time this summer wisely. We'll see. My 5th wedding anniversary is in September and I would really like to get to a point where I feel better about myself and my health.
I started taking Copaxone instead of Rebif for my MS. It might seen crazy to go to a daily shot but these already seem better. They don't burn during the injection and it only hurts for about an hour after the shot. Plus my skin isn't freaking out like it did with the Rebif. So I no longer have big red patches all over my body which is a plus. The side effects aren't as bad and I don't have to take any medications to help with side effects of the Rebif. So, all in all, I think it was a good switch. I don't really even mind doing a shot daily though sometimes it's a pain. I have it in my phone to remind me each night so I don't forget. The supplies themselves are much easier to keep in a pretty Thirty-One zipper pouch instead of hauling a great big bag around all the time.
Hopefully I am going in the right direction. Only time will tell!
1 comment:
Jen, I'm glad the med switch is working fr you. I wish there was one drug that w0orked equally for everyone. Of course, I also wish there was just a cure! The Gylenia has pretty much ended my fatigue, except at the end of the day if it's been a physically demanding day. Of course, I still can't walk more than 3 feet without a device for help, but it's an energetic 3 feet!
I'm working on getting more disciplined with my diet too. I haven't gained, but haven't lost in the last month. Need to fix that!
Stay positive and keep on moving in the better direction!
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